Amongst acromegaly patients, it is relatively well known that the symptoms can be greatly reduced by maintaining a healthy diet. When I first joined the facebook group, I could find posts about diets that helped and methods that worked for people. It was already apparent to most that carbohydrates (pasta, bread, rice, potatoes, but especially sugars) had a negative effect; the symptoms would become more prevalent (for example water retention, joint aches, tiredness, headaches…).
Slowly, but steadily, western medicine people (doctors and such) come to realize that food may have a bigger impact on health than previously thought. (When I first came to the hospital specialized in this disease, they told me there were no diet recommendations…). Currently, my doctor is researching the impact of a low carb diet (ketogenic) on blood values that are typical for acromegaly patients. She is aiming for a proof of concept: showing that a low carb diet has positive effects on the short term.
So when she asked if I wanted to join her study, I agreed. I have been experimenting with what to eat and how to make myself feel better. This study wouldn’t be too hard. Just two weeks of eating no carbs. No chocolate, no chips, no fries, no bread, no fruits, no rice or beans, obviously no sugar: a purely ketogenic diet. Meaning: with this diet, my body would have to make energy out of fats and not out of carbohydrates. Two weeks. How hard could it be? To make matters easier, my sister decided to join in on the diet. Thinking shared pain is half the pain.
Turns out, although it wasn’t particularly hard, it got boring quite fast. From my experience with intermittent fasting, I already knew that not eating could be confrontational. But this eating without taking any carbs was more torturous than not eating in my opinion. Eating got boring, the fun was taken out of it. The first few days are supposed to be the hardest, as your body adjusts to burning fat instead of carbohydrates. This switch was harder for my sister than for me 🙂 A week was doable, but halfway through the second week, I was fantasizing about what I would eat once I was done. By then my sister quit altogether. This mostly had to do with a weekend getaway with my parents that contained a lot of my sisters’ favorite carbohydrates. I persevered.
At the end of the two weeks I was asked to join a study to take less than 80 grams of carbohydrates a day. But this turned out to be too hard for me. Additionally, in my regular diet I don’t eat too many carbs anyhow, but the ones I do eat, are mostly found in chocolate… oops 😉
As far as blood values go, at the beginning of the study, I already had a new all-time low value (IGF-1) without starting the study. Which indicated to me that intermittent fasting is working for me. During the study, this value increased slightly. This indicated to me that it didn’t do anything different (values tend to rise towards the end of an injection period). The value also didn’t decrease. And since I know that for me intermittent fasting works and is fairly sustainable in my lifestyle, this has my preference. (It needs to be mentioned though, that I didn’t stop my 16:8 regime during these two weeks. To maintain a similar eating pattern for a fair comparison.)
Still, it was fun to participate as a form of experiment. And I am still curious as to some other findings. When I find her article on this study (I suspect it is not published yet) I will include a link to it.